The Welcome Mat ...

Part of my job is to set up patient rooms for the patients we have coming the next day. Without putting too much information out there, I think (for the purpose of this blog) it's important to the story to explain a little about who our patients are and where they come from.

The unit that I work on has the number one doctor in her field in the world and the hospital I work at is also a globally rated facility for the care of certain conditions. The unit I work in is particularly special because of who we treat. We treat patients that have been diagnosed with a certain, rare, strain of bacterial infections that include a few really well known (but rare) infections and some that aren't well known, but all in the same bacterial family. The idea is that the patient comes and stays for five days and in those five days they are given very thorough testing, both traditional and nontraditional, and amazing care from doctors and nurses that specialize in exactly what is wrong with them. Often they

15 Days ...

Originally posted on my "old" blog ... November 12, 2010 ... although I added extra information at the end ...  and appropriately this is being scheduled to post on my son's birthday ...

My five year-old son spent 15 days in the hospital, including two surgeries, six in-room procedures and countless tubes, IVs, pokes and other fun things ... so here is the entire story.

First off, I will preempt this by telling all my lovely readers that my middle daughter has a history of chronic illness, and usually when these kinds of things happen, they happen to her. My son does have a history of Reactive Airway Disease (RAD) and has had pneumonia three times, but two of them weren't bad at all and the third was associated with lab-confirmed H1N1 last fall. He did end up on in-home oxygen with that one, and they talked about hospitalizing him, but never did.

So, here is the story of our little adventure this fall ....

On Wednesday October 13, my cute little five year-old boy started off a cold with some sniffles and a little bit of a cough, but nothing seemed too bad, according to his dad (sidebar- my kids go every other month and every other weekend between their father and me, October was their month with their dad). Saturday morning his dad started getting more worried about him, he was spiking high fevers, throwing up almost everything he ate (including medicine), and had a really good, unproductive cough ... Sunday morning my son was taken to urgent care, they said that he sounded clear, his O2 Saturation was in

Scared ...

This is something I don't talk about a lot ... and it's probably something I should be talking about ... I don't feel comfortable with the subject because, quite frankly, it scares the living shit out of me ... so I don't talk about it with my closest friends ... or my family ... but for some reason ... today ... I'm going to share it with the people that read this blog ... the bulk of which are strangers ...

I think I don't talk about it because I don't think people realize how much it really scares me ... how much I avoid it ... and then I finally do say something ... and nobody responds ... leading to me posting about how it actually hurt my feelings to have no responses on Facebook about it ...

So here it goes ... my kidney is slowly failing ... I say kidney because they already took